2010 Patient Retreat Agenda

1st Annual Eye Am Not Alone Conference:Educating, Supporting and Building Hope for the Ocular Melanoma CommunityOctober 23-24, 2010

8:00 - 8:45: Registration and Continental Breakfast
8:45 - 9:00: Welcome
9:00 - 9:10: OMF/OMRC Update
9:10- 10:10: Keynote: Thomas P. Sellers, MPA, National Coalition for Cancer Survivorship
10:10 - 10:30: Break
10:30 - 12:00: Small Group Break-Outs (Facilitated by DFCI Social Workers)
12:00 - 1:00: Lunch
1:00 - 2:30: Clinician and Researcher Panel One / Q&A*
2:30 - 2:45: Break
2:45 - 4:45: Clinician and Researcher Panel Two / Q&A**
4:45 - 5:00: Break
5:00 - 6:00: Navigating Clinical Trials:Andrew Wolanski, NP/Suzanne Mac Rae, RN,MPH
6:30 - 8:15: Dinner and Musical Entertainment: Singer/Songwriter Miss Tess
8:00 - 8:30: Continental Breakfast
8:30 - 10:00: Integrative Therapies Panel (Organized by the Zakim Center at DFCI)***
10:00 - 10:15: Break
10:15 - 11:15: Small Group Break-Outs (Facilitated by DFCI Social Workers)
11:15 - 12:15: Using Mindfulness to Cope with Cancer for Patients and Caregivers: Mary Jane Ott, MN, MA, RNCS & Amy Grose, LICSW
12:15 - 12:30: Closing and Thank You!
* Clinician and Researcher Speaker Panel 1:
Dr. Miguel Materin, MD, Ophthalmologist – Yale University
Dr. Takami Sato, MD, PhD, Medical Oncologist - Thomas Jefferson University
Dr. Scott Woodman, MD, PhD, Medical Oncologist - MD Anderson Cancer Center

Topics will include:
What to expect following the primary treatment
Genetic testing to the primary tumor
Adjuvant therapy options
Screening/scanning options
Introduction to clinical trials
How to get a biopsy of tissue and what testing to do with it
What are GNAQ and GNA11 and what are the implications?

** Clinician and Researcher Speaker Panel 2:
Dr. Keith Flaherty, MD, Medical Oncologist - Massachusetts General Hospital
Dr. F. Stephen Hodi, MD, Medical Oncologist - Dana-Farber Cancer Institute
Dr. Anand Mahadevan, MD, Radiation Oncologist - Beth Israel Deaconess Hospital
Dr. Charles Nutting, MD, Interventional Radiologist - Swedish Medical Center

Topics will include:
Options for liver directed therapy: embolization, ablation, PHP, etc.
Extra-hepatic local treatment options: radiation, ablation, etc.
Systemic treatment options
Immunotherapy: Ipilimumab and PD-1
IFN and IL-2
Are there vaccines for uveal melanoma?
Targeted agents for uveal melanoma (i.e. MEK inhibitors, IGF1R, etc)
Finding centers performing a specific type of treatment

*** Integrative Therapies Speaker Panel:
Mary Jane Ott, MN, MA, RNCS
Emily Biever, MS
Weidong Lu, MB, PhD, MPH, LiCAc
Theresa Ochenkoski, LMT
Suzanne Oliver
Brian Jantz, MT-BC

Topics for patients and caregivers will include:
Navigating integrative approaches in conjunction with other treatments
Massage Therapy
Music Therapy
To go back to the "Eye Am Not Alone" conference page, click here.

Thank you to our 2010 Conference Sponsors!

Platinum level sponsor
Dana-Farber Cancer Institute

Gold level sponsor
Delcath Systems, Inc