Other Online Resources

Facebook Groups

Ocular Melanoma Friends & Family Group (Closed and Private)
> Ocular Melanoma Support for Spouses (independently managed)
> Ocular Melanoma Support Group (Closed and Private)

Discussion Groups & Listservs

Currently, there are over 3,500 members on the Patient Forum. To join, just visit the forum, sign up, and begin creating your own custom profile. You can upload as little or as much information as you like and begin interacting and learning today. SIGN UP NOW

Support Groups

CancerCare - cancer support groups, counseling, education and financial assistance
LIVESTRONG Navigation - 1 on 1 support, local support groups and other valuable resources
> LIVESTRONG Rally - ​community organizational tool that lets your loved ones know how they can support you through your cancer journey
> Melanoma Foundation's list of Melanoma Support Groups (note: many of these are aimed at skin cancer)

Financial Assistance

Here are some options for financial assistance from government agencies, organizations and other programs that provide resources for cancer patients and their families.
> Patient Advocate Foundation – find assistance with insurance issues
Government Benefits – find benefits you might be eligible for
US Dept. of Health and Human Services – find free or reduced cost healthcare

If a patient has insurance but still can’t pay:
> Assistance Fund - a non-profit finanical aid foundation
PAN (Patient Access Network) Foundation  – a non-profit co-payment foundation 
Patient Services Inc. – a non-profit premium and co-payment foundation
The Healthwell Foundation – when health insurance is not enough

If patient does not have insurance:
> CancerCare

Recommended Blogs

The Eyes Have It - by Dove Karn, ocular melanoma patient
FightCancerWithMe - by Tom Loverro, choroidal melanoma patient
LostEye - by Jay Adkisson, choroidal melanoma patient who lost his eye in 2000

More blogs on our Press page >

Other Sites

> MyUvealMelanoma.com (run by Castle Biosciences)
Eye Cancer Network (run by Dr. Paul Finger)
National Cancer Institute (NCI) PDQ on Intraocular Melanoma
Treatment Trials
> EyeMelanoma.org - educational and support resources for patients and their families
> Cancer & Careers - educational resources to help people with cancer thrive in their workplace 

Support Organizations

A Cure In Sight (ACIS), a not-for-profit organization founded by OM survivor and activist Melody Kling, is dedicated to raising ocular melanoma awareness and to helping those with OM find and pay for the treatments that they need. ACIS generates funds through the sale of OM awareness products, by accepting donations of money, travel vouchers/frequent flyer miles, timeshare weeks, hotel vouchers, gift cards and gas cards to help patients find and pay for necessary treatments otherwise outside of their medical budget.

> ACIS Site 

Founded in 2011, the Community United for Research and Education of Ocular Melanoma (CURE OM) is an offshoot initiative of the Melanoma Research Foundation (MRF), a melanoma group focused primarily on cutaneous (skin) melanoma, to increase awareness, education, treatment and research funding forocular melanoma while improving the lives of people affected by this disease. The initiative is led by Sarah Selig, former Scientific Chair of OMF.

> CURE OM Site

OcuMel UK is a charity based in the United Kingdom which represents sufferers of ocular melanoma. The organization aims to "support patients and their families by providing accurate, up-to-date information and emotional support via [their] website and helpline. [Their] vision is a world where all ocular melanoma sufferers and their families are given the information, support and treatment they need."

> Ocumel UK Site

Podcasts

Survivorship

CancerCare Resources

Disclaimer

Nothing on this site is meant to replace the opinion of a medical professional. Please consult with an ophthalmologist and oncologist, at a minimum.

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