Patient Resources

Today, OMF is the top resource for OM patient support, education and advocacy. We strive to provide patients and their caregivers - both the newly diagnosed as well as those looking to gain a greater understanding of their disease - with both cutting edge research and a full suite of tools to guide them along their treatment journey.

A hallmark of OMF's support program is our focus on interconnectedness. Given the orphan nature of OM, it is imperative that patients lean on and learn from others in the OM community and as the non-profit support group in the middle of that ecosystem, OMF seeks to provide tools and resources to facilitate and amplify that community communication.

The three major pillars of the OMF patient communication toolset are (1) the Patient Forum (you can read more about that below), (2) the many social media outlets we administer, including a very active Facebook group that is closed to just OM patients and caregivers, and (3) a range of events, including the world's first gathering of OM patients, the Eye Am Not Alone (EANA) Patient Retreat Series, held every year at leading institutions around the country.

OMF is also pleased to partner with a number of other organizations to ensure that patients and caregivers receive the fullest range of information and support. We encourage you to read about these other services, many available online, under our Other Online Resources section and to use other tools such as the OCU-MEL listserv.

As always, if you have a question, feel free to email us at questions@ocularmelanoma.org.

OMF Patient Forum

The OMF Patient Forum is an interactive social network with around 2,000 active members. It allows patient, their friends and loved ones, and even doctors to interact with each other, share valuable treatment information, and learn more about ocular melanoma in a secure environment.

To get started, please visit the forum and sign up. You can create a custom profile, upload as little or as much information as you like, and begin interacting and learning today. Feel free to browse the forum discussion board and post about your own OM story. SIGN UP NOW

Disclaimer

Nothing on this site is meant to replace the opinion of a medical professional. Please consult with an ophthalmologist and/or oncologist experienced in diagnosing and treating uveal/ocular melanoma.

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