Other Online Resources

General Understanding (run by Castle Biosciences) - understand FNAB, genetic testing and the Castle test outlined here
National Cancer Institute (NCI) PDQ on Intraocular Melanoma
The Eleanor and Maxwell Blum Patient and Family Resource Center - Patients and their families often want to learn more about what exactly a diagnosis means and how it will impact their family and their lives. Through a combination of online courses and resources, this virtual outpost of the Dana-Farber Cancer Institute seeks to provide the knowledge people need to understand the road ahead.
Treatment Trials educational and support resources for patients and their families

Other Recommended Non-Profits

A Cure In Sight - separate non-profit established by Melody Kling, a patient and long-time friend of OMF
OcuMel UK
Eye Cancer Foundation - comprehensive medical information and associated non-profit established by Dr. Paul Finger, a NYC based doctor
Melanoma Resource Foundation / CureOM
Melanoma Resource Alliance

Facebook Groups

Other Support Groups

CancerCare - cancer support groups, counseling, education and financial assistance
Melanoma Foundation's list of Melanoma Support Groups (note: many of these are aimed at skin cancer)

Financial Matters

Cancer Finances - Answer some questions about your illness and your financial life and this interactive tool will guide you to the information you most need to make sound financial decisions.

Here are some options for financial assistance from government agencies, organizations and other programs that provide resources for cancer patients and their families.
Disease Funds - The Healthwell Foundation provides grants so that people who are underinsured can still afford the cancer treatments they need
Family Reach Financial Treatment Program - believes that financial assistance to cancer patients should start at the same time as their treatment begins so that the monetary impact of cancer doesn’t have a long-term effect on their financial health.
Patient Advocate Foundation– find assistance with insurance issues
Government Benefits– find benefits you might be eligible for
US Dept. of Health and Human Services– find free or reduced cost healthcare

If a patient has insurance but still can’t pay:
Assistance Fund- a non-profit finanical aid foundation
PAN (Patient Access Network) Foundation– a non-profit co-payment foundation 
Patient Services Inc.– a non-profit premium and co-payment foundation
The Healthwell Foundation- when health insurance is not enough

If patient does not have insurance:


The Eyes Have It- by Dove Karn, ocular melanoma patient
FightCancerWithMe- by Tom Loverro, choroidal melanoma patient
LostEye- by Jay Adkisson, choroidal melanoma patient who lost his eye in 2000

Other Cancer Resources

Cancer & Careers- educational resources to help people with cancer thrive in their workplace
University of Pittsburgh Cancer Resource list - a truly terrific, extensive list of resources spanning financials to local support groups

OcuMel UK is a charity based in the United Kingdom which represents sufferers of ocular melanoma. The organization aims to "support patients and their families by providing accurate, up-to-date information and emotional support via [their] website and helpline. [Their] vision is a world where all ocular melanoma sufferers and their families are given the information, support and treatment they need."

Ocumel UK Site



CancerCare Resources


Nothing on this site is meant to replace the opinion of a medical professional. Please consult with an ophthalmologist and oncologist, at a minimum.

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